$5.00 WRISTBANDS and carnival games at Funderland during the Hope for Hank Funder-raiser this Friday evening from 5-8pm!
Helping Hands for Hank is an organization to offer financial aid and support to 10 year old Hank Gibbs as he fights Parry Romberg Syndrome. Parry Romberg Syndrome is an extremely rare, progressive auto-immune disease that causes neurological problems and “hemi-facial” atrophy meaning it “wastes” half the face away. Only about one in 6 million worldwide have this disease!
They have found a specialist in NYC who has had success halting the progression. Hank had his first major surgery in July 2009 and the revision surgery on Dec. 2, 2009. Both surgeries were performed in NYC. Now they wait to see how he does and if the surgeries were successful. A follow-up appointment and surgery will occur this summer, again in NYC. Fundraiser’s are being held for medical bills, travel costs and Hank’s care.
Have fun and support a great cause!